Calling anyway who may have Scoliosis...

milztoday absinthe at mad.scientist.com
Wed Dec 12 16:03:29 UTC 2001


--- In HPFGU-OTChatter at y..., "sofie_elisabeth" <sofie_elisabeth at y...> 
wrote:
> I was diagnosed with Congenital Scoliosis in February (though I was 
> diagnosed with Scoliosis three years ago.) Recently my treatment has 
> been progressing very quickly and I'm feeling very overwhelmed. It's 
> hard being the only one I know with this condtion and very 
> frustrating not being able to make other people how scary the future 
> is for me. If any of you have this condition/or know someone with it 
> I'd really appreciate the support. I know it is asking a lot but I 
> thought it might be worth a shot.
> Sofie

Here are a few web sites with support groups
For the US: http://www.ai.mit.edu/extra/scoliosis/support.html
For the UK: http://www.scoliosis-world.com/cat21.htm
Non-specified: http://www.scoliosis-assoc.org/

Yahoo-Groups has 18 scoliosis related groups
http://groups.yahoo.com/search?query=scoliosis

I hope the above information will help you through this time. Also, I 
strongly encourage you to talk to your physician about your feelings 
and concerns as he/she should be able to refer you to a local group. 
Doctors usually seem rushed (here in the US) but if you tell your 
doctors about your feelings, I'm pretty sure he'll lend a sympathetic 
ear.

Milz.





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